2022/
|
Nov 2023 - EMU schedule for the end of the month to continue to assess/observe Emma's Seizure activity
July 2023 - MRI to view 2 year post-op Continual adjustments to medications to determine the best combination for seizure control |
2021 |
September - Discharge from Holland Bloorview
July - 4 Day EMU observation to monitor Emma's 'new' brain July 6 - Admission to Holland Bloorview Kids Rehabilitation Hospital to begin extensive Speech, Occupational and Physio Therapies June 28 - Surgery: Full Corpus Callosotomy to help eliminate seizure activity between the left and right hemispheres. Read more here about Corpus Callosotomy June 8 - MRI to map brain prior to surgery |
2019 |
2018 |
Dec - Stopped using CBD oil as seizure control did not see change
Oct - Began taking CBD oil July - PET/CT Scan - Keto Workshop Information Session June - Placed on the waiting list for VNS Surgery Feb - PET Scan |
2017 |
Dec - MRI
Oct - Neuropsychology Assessment @ SickKids Sept - 4 Day EMU observation July - Routine EEG |
2016 |
Sept - Overnight EMU observation
Aug - Routine EEG March - MRI |
2015 |
July - Routine EEG - ERG for possibly toxicity
June - Completely off Vigabatrin April - Routine EEG - begin 6 week wean off of Vigabatrin March - ERG - Retinal scan to ensure Vigabatrin not affecting peripheral vision |
2014 |
Nov - Electroretinogram (ERG) Baseline for Vigabatrin toxicity
Oct - MRI Oct. 9 - EEG at SickKids - Diagnosed with Infantile Spasms - started Vigabatrin Oct. 7 - Visit to pediatrician after concern of motion Emma was doing after waking up from a nap |